Lyme Resources

Below you will find a list of many different Lyme Disease resources. 

*Please contact me if you think someone or an organization should be added to this this list.

PODCASTS:

You learn so much on Mackay Rippey & Aurora’s Lyme Ninja Radio

Lyme Voice podcast covers the emotional and sociological side of Lyme as well as some interesting treatment strategies. 

Better Health Guy has some wonderful Lyme related blog casts.

Living With Lyme offers some informative podcasts.
*Sometimes we pay so much to spend an hour with a Lyme literate doctor. I am so grateful for these podcasts. I see them as free education. Please consider subscribing or donating to them from time to time! I have learned so much from these folks! ~ Thanks Lyme Podcasters!


FILMS:

Under our skin- A film made on the Lyme Disease epidemic. This film explores why Lyme is not covered by insurance and follows the story of numerous people trying to overcome lyme. 


Emergence- The sequel to Under Our Skin


Unrest -This film is about chronic illness, in particular CFS/ME. Interestingly, CFS is often misdiagnosed Lyme Disease.


Our Battle Ongoing- Australian film on chronic Lyme. Available to watch on Amazon Prime and Youtube.


Get Better- a film by Emily Reach White who lost her father to chronic Lyme. This film may go over the heads of many, but for those of us familar with the social alienation and social shame of Lyme disease it will make alot of sense. 


Invisible Illness and Incommunicable Diseases  Emily Reach White speaks about the inspiration for making the film Get Better at TEDxGreenville.


Know How Things Work you’ve channel has some interesting and insightful videos about Lyme treatment

Lyme Disease: A Silent Epidemic

More films are here


UNDERSTANDING LYME TERMS AND ABREVIATIONS:

Glossary of Lyme Terms


LYME FOUNDATIONS AND ORGANIZATIONS:
ILADS

Lymedisease.org

Global Lyme Alliance

Lymelight Foundation

Lyme Action Network

Bay Area Lyme Foundation

LivLyme Foundation

Lyme Disease Association

Lyme Warrior

Children’s Lyme Network

Lyme Disease Association of Southeastern PA 

Lyme Brave Foundation 

Suffering The Silence

Stand 4 Lyme

TruthCures

Action Lyme

Lyme Advise


EMOTIONAL & SOCIAL SUPPORT:

Lyme Disease In person Support Groups

An other list of support groups


SOCIAL MEDIA LYME DISEASE SUPPORT GROUPS~ These are places to connect with people going through similar challenges. It is a place to ask questions. These groups should not replace medical advice. Folks, please try to keep it positive!! There is too much snarkiness on social media. Try to remember that we’re all trying to heal. Please be kind!

Facebook Support groups:

Lyme Disease Support Group

Lyme Disease Group

Parents of Kids with Lyme

'Baby' Buhner, Cowden, Klinghardt and more

PARENTS of CHILDREN with PANDAS/PANS/LYME/TICK-BORNE DISEASES

Lyme Disease-All treatments discussed

Buhner Healing Lyme and co-infections

Lyme Herbs, Oils, and others
Homeschool Lyme Mamas
Essential Oils and Lyme

Toxic Mold, CIRS and Lyme Disease Support Group

Beating Bartonella

Babesia Buddies
Women's Lyme Disease Support Group
Lymie Moms Unite
Alive with Lyme

Fit Lyme Warrior
Let me know if you have more helpful links!


LYME BOOKS (Be sure to have your Amazon Smile linked to a Lyme organizations like LymeLight Foundation, Lyme Warrior or Ticked off Foundation)

Stephen Harrod Buhner Books- Healing Lyme, Healing Lyme Disease Co-infections, Herbal Antivirals, Herbal Antibiotics, Etc ~The man is brillant!
Richard Horowitz- Why can’t I get better?  and How Can I get better?
Dr. Rawls- Unlocking Lyme and Suffered Long Enough
Bryan Rosner-When Antibiotics fail Lyme disease and Rife Machines, The Lyme Autism connections, and The top ten Lyme diease treatments
Wolf D. Storl- Healing Lyme Disease Naturally
Brian Fallon- Conquering Lyme Disease: Science Bridges the Great Divide
Vir McCoyLiberating Lyme: An Integrative Approach To Healing Lyme Disease

Katina I. Makris- Out of the woods
Jennifer Heath- Overcoming Lyme Disease
Ally Hilfiger and Tommy Hilfiger- Bite Me: How Lyme Disease Stole My Childhood, Made Me Crazy, and Almost Killed Me 
Dr. Nicola McFadzean Ducharme ND- Lyme Brain, The Lyme Diet, and The beginners Guide to Lyme Disease

Sandra K BerenbaumWhen Your Child Has Lyme Disease: A Parent's Survival Guide
Minday Haber- Lyme Rage: A Mother's Struggle To Save Her Daughter from Lyme Disease

Michael C CarrollLab 257: The Disturbing Story of the Government's Secret Germ Laboratory

Connie Strasheim- New Paradigms in Lyme Disease Treatment and Insights into Lyme disease treatment, The Lyme Disease Survival Guide, 
Pamela Weintraub- Cure Unknown
Nicolenya CaltmanLil' Lymie Fly Away Home: "A woman's journey through Lyme Disease, and her life after.”

James Schaller MD and Kimberly Mountjoy MS -Combating Biofilms: Why Your Antibiotics and Antifungals Fail
James Schller, MD
The Diagnosis, Treatment and Prevention of Bartonella

Lawrence B. Afrin M.DNever Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity

Mariska de Wild-Scholten- Understanding Histamine Intolerance & Mast Cell Activation, Understanding Histamine Intolerance: A food intolerance with allergy-like symptoms

M. M. Drymon PhD- The Persistent Spiral: The Ancient History of Lyme Disease and Co-Infections

PJ Langhoff- It’s all in your head, The Fourth Monkey 

Ben Lynch, ND- Dirty Genes: A Breakthrough Program to Treat the Root Cause of Illness and Optimize Your Health

Beth Alison Maloney- Childhood Interrupted

Dr. Neil Spector- Gone in a Heartbeat: A Physician's Search for True Healing

Yolanda Hadid- Believe me: My Battle with the Invisible Disability of Lyme Disease

David Kent-The Lyme book for family, friends, and caregivers: A primer for those diagnosed with Borreliosis and co-infections

Contact me if you have a suggested book to add to this list.


LYME BOOKS FOR CHILDREN:

Jessie RileyMy Invisible Cosmic Zebra Has Lyme Disease—Now What?

Michele Morgan and Lauren Lovejoy- Grace and Scout

Sarah Schlichte Sanchez- Little Bite, BIG Trouble: A Bird's-Eye View of Chronic Lyme Disease 

Melanie S. Weiss- In A Pickle Over PANDAS


“EXPERTS” in the Lyme field. 
LymeCompass.net does not promote or advocate for you to see these doctors, They are just well known names that have contributed to greater understanding of Lyme treatment. Please try to remeber that above and beyond all “expert” opinions, you are your most wise healer. 💚

Dr. Alan MacDonald is an amazing human being. His contributions to Borellia research is truly amazing.  He has many informative videos, published papers and photographs on his website.

Bob  Miller is an naturopath in PA and is transforming  Lyme treatment by individulizing care. He explores clients DNA expressions and helps them overcome nutritional deficiencies, trying to make the body as inhospitable to lyme as possible so healing is possible. He has created a software to interpret DNA and is teaching health care providers all over the world his methods. Below is part 1 of a part 3 series where Bob explains his work:



Dr. Richard Horowitz has been a Lyme literate doctor for over 30 years. He has written several books and has a private practice in Hyde Park, NY. Here is a talk of his from a 2017 Lyme Conference.


Dr. Dietrich Klinghardt has a medical practice in Seatle, WA. His website has many helpful videos


Dr.  Joseph Jemsek  was the physician to diagnose the first AIDS case in NC. He played an important role in understanding and treating HIV and AIDS. Dr. Jemske started working with Lyme patients and had a practice treating chronic Lyme in Hunterville, NC. In 2006, he was sued by Blue Cross NC for treating Lyme outside of CDC guidelines and billing insurance for it. Dr Jemske had to file for bankruptcy and lost everything. Do you know what he did? He dusted himself off and started a new practice in Washington DC treating Lyme patients. This man is not giving up! The following is a moving speech of his:


Dr. Joesph Burrascano has closed his 20+ year practice in NY but  he is now working with ILADS on a comprehensive database system to improve treatment and outcomes for people with persistent Lyme and other tick-borne diseases.


Dr. Charles Ray Jones is a pediatric Lyme specialist who has helped over 15,000 children with Lyme Disease. He is deeply appreciated for his work with children in the Lyme community.


Dr. Steven Phillips has a practice in Wilton, CT. He and Dana Parish have a Lymebook facebook page with very informative videos.


Dr. Bill Rawls is no longer practicing but has a website with lots of information about overcoming Lyme and co-infections with herbs and natural supplements


Stephen Harrod Buhner  He is a wise and gifted herbalist who has written numerous books on tick borne illness.  His website is an incredible resource.


Dr. Bernard Raxlen has a practice in New York City where he specializes in the treatment of neuropsychiatric symptoms of Lyme Disease


Dr. Howard Robbins runs an ozone treatment clinic in New York City where he treats many Lyme Disease patients. His efforts helped stop the spread of the recent Ebola virus outbreak in Africa.


Dr. Jerry Tennant is a brilliant doctor in Irving, TX. Dr. Tennant invented the Biomodulator, a pain management device that also helps people heal from chronic illness by increasing their voltage so they can make new cells.


Dr, Elena Frid  is a Neurologist and Clinical Neurophysiologist specializing in Infections Induced Autoimmune Disorders. Her practice in New York City sees patients with complex cases of Lyme disease and co-infections resulting in various neurological complaints. She also created insect repellant kid’s wear.


Dr. Neil Spector is a practicing oncologist in NC who got very ill with Lyme disease. He wrote a book about his experience, “Gone in a Heartbeat”. In the video posted below he speaks about emerging Lyme research and the similarities between Lyme & Cancer.


Dr. Ritchie Shoemaker is well known for his work with mold toxin illness but he has recently been doing some amazing research with Lyme.

The West Clinic is located in Pocatello, ID.


I know I’m accidently leaving some people out. Please contact me to add an other amazing human being to this list.


LEGAL RESOURCES:

Melissa Kaplan’s resources for Activism, Advocacy, and Patient Rights

Lyme and filing for Disability

SSA List of Disability Impairments- Due to the corrupt nature of the IDSA & the CDC, Chronic Lyme Disease is not considering a “real” disease. Because of this Lyme Disease treatment is often not covered by insurance and it is not an approved illness for disability. However, CFS (Chronic fatigue syndrome), IDS (Immune dysfunction syndrome), Depression, Musculoskeletal System problems, Inflammatory bowel disease, Cardiovascular Impairment, Endocrine Disorders, Cognitive Disorders, etc are approved. Lyme Disease may be the underlying cause of your heart problems, stomach pain, brain fog, hypothroidism, adrenal failure, joint pain, insomnia, and anxiety but when appyling for disability you have to communicate the “approved" impairments.

Melissa Kaplan’s advice on Filing for Disability

If you are a Veteran with Lyme Disease the Maryland Lyme website has great resource links


LYME RESEARCH GRANTS:

NatCap Lyme 

LivLyme Foundation


DISCLAIMER: There are several affiliate links throughout this site. When you purchase a product through an affiliate link, a small portion of your sale will go to supporting this educational website at no additional cost to you.                 LymeCompass.net content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. The information on this site is for educational purposes only.
Communicate with your Lyme literate physician or other qualified health care provider with questions you have about your medical condition.
Do not disregard professional medical advice or delay seeking it because of something you have read or saw on this website. The statements in this site have not been evaluated by the FDA.
LymeCompass.net does not recommend or endorse any specific tests, physicians, products, opinions, procedures or other information that are mentioned on this website. 
We are not a medical entity. The content of this site is not medical advice. This website is not intended to diagnose, treat, cure or prevent any disease. It is for research purposes only!
Privacy Policy
© LymeCompass.net ~Meredith Klein ~2018-2019~All rights reserved.

This site is a work in progress and will be updated often!